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Survey on Pulmonary Fibrosis and Thoughts About Genetic Testing

Pulmonary Fibrosis

Researchers Dr. Kerri Johannson and Dr. Amanda Grant-Orser from the University of Calgary are conducting a survey to better understand the perspectives of Canadian Pulmonary Fibrosis patients, and their first degree relatives, on having access to genetic counseling and testing for mutations associated with Pulmonary Fibrosis.

The survey is anonymous and all data will be confidential. This study was approved by the University of Calgary's research ethics board (REB20-1553).

Canadian patients with Pulmonary Fibrosis and their first degree relatives e.g., parent, sibling, child, are invited to complete the survey at the link below.

Pulmonary Fibrosis Survey Link